Families deserve to be heard.
ROHHAD FIGHT is a 501(c)(3) nonprofit organization dedicated to raising awareness of ROHHAD, connecting families with resources, and supporting the search for answers.
Rare diseases can leave families facing uncertainty and a lack of public understanding. Our mission is rooted in the belief that awareness and connection matter.
Our priorities
Awareness
Help more people understand ROHHAD and the challenges faced by affected families.
Family resources
Make educational information and existing support materials easier to find.
Research information
Share archived materials and opportunities for continued learning.