What is ROHHAD?
ROHHAD stands for Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation. It is a rare, potentially life-threatening condition involving multiple body systems.
ROHHAD can involve changes in weight regulation, breathing, hormonal function, and autonomic nervous system function. Presentation and clinical needs vary between individuals, and care requires appropriate medical evaluation and ongoing monitoring.
This page provides general educational information and is not a diagnostic tool. Anyone concerned about symptoms should consult qualified clinicians experienced in complex pediatric conditions.
Understanding the name
Rapid weight gain can be an early feature of the condition.
Changes involving the hypothalamus can affect the body's regulation of hormones and other functions.
Impaired breathing regulation may require specialized respiratory assessment and support.
The autonomic nervous system controls involuntary functions, and disturbances can affect multiple systems.
Where to learn more
Explore historical educational materials preserved from the original ROHHAD FIGHT website. These documents may not reflect current clinical guidance.
Explore the research and education library ↗Read the 12 Days of ROHHAD series ↗