rohhadfight@aol.com
(516) 642-1177
(516) 483-0566 (Fax)
ROHHAD Fight, Inc.
3 Surrey Lane,
Hempstead NY 11550
ROHHAD FIGHT Inc. is a 501c3 nonprofit organization. Our mission is to expand knowledge of the rare syndrome called ROHHAD, advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.