ROHHAD FIGHT Inc.

ROHHAD FIGHT Inc. is a 501c3 nonprofit organization founded for Marisa, a Bayport girl with a rare disorder.  Our mission is to expand knowledge of the rare syndrome called ROHHAD (Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood), advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.

  ROHHAD FIGHT 7th Annual Golf Outing Pictures

 

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