ROHHAD FIGHT Inc.
ROHHAD FIGHT Inc. is a 501c3 nonprofit organization founded for Marisa, a Bayport girl with a rare disorder. Our mission is to expand knowledge of the rare syndrome called ROHHAD (Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood), advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.
|31 Jul 2017|
7th Annual ROHHAD Fight Golf Outting