ROHHAD FIGHT Inc. is a 501c3 nonprofit organization founded for Marisa, a Bayport girl with a rare disorder.  Our mission is to expand knowledge of the rare syndrome called ROHHAD (Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood), advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.

  ROHHAD FIGHT 7th Annual Golf Outing Pictures


Upcoming Events

28 Feb 2018
05:00PM - 09:00PM
Rare Disease Day - Fundraiser