ROHHAD Reader

 

The ROHHAD Association, ROHHAD Fight Inc., and the Center for Autonomic Medicine in Pediatrics (CAMP) at the Ann & Robert H. Lurie Children’s Hospital of Chicago have partnered with families and friends around the world to produce and publish the very first edition of the ROHHAD Reader – a ROHHAD newsletter designed specifically for families whose everyday lives are affected by this rare disorder.

Within the pages of this ROHHAD Reader, you will find research updates, family stories, fun photographs, researcher spotlights, information about upcoming events and fundraising opportunities, helpful resources, shared experiences, and diverse perspectives. We hope that these pieces will help us establish open and accessible lines of communication and build a strong sense of community among the physicians, researchers, foundations, and families who are all committed to improving the lives of children and adults affected by ROHHAD.

The ROHHAD Reader - October 2018